Now playing Next Smart Health Rare diseases: "Recognition of a disability is still complicated" Diagnosis and treatment of rare illnesses can often be complicated due to the condition's very nature. Caroline suffers from a rare genetic disease called Stargardt Syndrome. Smart Health spoke to her about what it's like to live with a rare disease. 16/06/2022
Now playing Next Health Justin Bieber: Is Ramsay Hunt syndrome linked to COVID vaccines? The Canadian pop singer said this rare condition had paralysed half his face. Here’s what you need to know about it. 13/06/2022
Now playing Next Euronews Debates How can Europe advance rare diseases innovation? | Euronews Debates Euronews has gathered a panel of experts, industry leaders and key players in Brussels to address the issue of how rare disease provision can be advanced in the EU. 07/01/2022
Now playing Next Health Meet the father who built a home laboratory to save his child’s life The medicine that could help this man’s son is not available in China, while COVID prevented any possibility of travelling abroad for treatment. 25/11/2021
Now playing Next no comment Blind Japanese skateboarder going by feel Ryusei Ouchi has all the usual trappings of a skateboarder -- the baggy T-shirt, the low-slung trousers, the flat-peak baseball hat. But he also skates with something else: a cane - because he is almost completely blind 26/07/2021
Now playing Next Biztech news UK baby first to receive a game-changing gene therapy on the NHS Zolgensma is a potentially life-saving therapy for five-month-old baby Arthur Morgan. It’s also one of the world’s most expensive drug. 01/06/2021
Now playing Next world news Web Summit 2019: AI and drug development mark new era for pharma Web Summit 2019: AI and drug development mark new era for pharma 07/11/2019
Now playing Next Mongolia Tourists quarantined in Mongolia after two die of bubonic plague Tourists and residents at a city in Mongolia have been in quarantine for almost a week after two people died of the bubonic plague after eating what one tourist called a 'woolly, fat hamster,' 07/05/2019
Now playing Next Pakistan Polio in decline in Pakistan Polio is at last beginning to subside in Pakistan, however, with the Taliban holding a vendetta against those daring to vaccinate against the highly contagious disease, how much can one man do to cont 24/10/2016
Now playing Next Croatia Croatian charity calender launched to help Down's syndrome children A charity calender is being produced featuring Croatian actors, sporting stars, pop singers and TV personalities. 10/10/2016
Now playing Next world news Rare diseases a cause for concern for Europe’s health service There are 6-8 thousand rare diseases and there is no effective cure existing against most of them according to EURORDIS, the European Organisation 28/02/2016
Now playing Next world news Zika virus continues to spread as pregnant women are advised to avoid traveling to Latin America El Salvador is the latest country in Latin America to be put on alert over the “mosquito-borne Zika virus”:#ZikaVirus: Women in El Salvador advised 22/01/2016
Now playing Next South Korea South Korea's President cancels planned US visit as more deaths from MERS are announced The President of South Korea has cancelled this weekend's planned visit to the US as two more deaths from MERS are announced. 10/06/2015
Now playing Next France L’Institut Pasteur files case over 2,000 mising samples of SARS virus L’Institut Pasteur has filed a case to the prosecutor of Paris to investigate the disappearance of more than 2,000 vials containing samples of the 15/04/2014
Now playing Next world news WHO says new meningococcal vaccine "acceptable" for use by UN organisations The vaccine Menomune®, which is designed to prevent invasive meningococcal disease, has been pre-qualified by the World Health Organization 03/09/2013
