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Rare diseases

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Commission’s hospital exemption divides health sector

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Stiff person syndrome: What we know about Celine Dion's rare disorder

The singer has been diagnosed with stiff person syndrome, a rare neurological condition with debilitating symptoms.

08/12/2022

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The world-famous photographer Rankin speaks to Euronews Culture about his latest project on haemophilia, shooting the Queen, and how he's come to understand human condition.

02/10/2022

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The smallpox-related virus has been mostly affecting men who have sex with men. Authorities are trying to curb its spread without perpetuating stigma.

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Rare diseases in Europe: does data sharing hold the key to progress?

IN PARTNERSHIP WITH THE EUROPEAN COMMISSION

Smart Health looks at how the EU's new European Health Data Space aims to improve care and treatment for patients suffering from rare diseases through better data and information sharing.

16/06/2022

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Rare diseases: "Recognition of a disability is still complicated"

IN PARTNERSHIP WITH THE EUROPEAN COMMISSION

Diagnosis and treatment of rare illnesses can often be complicated due to the condition's very nature. Caroline suffers from a rare genetic disease called Stargardt Syndrome. Smart Health spoke to her about what it's like to live with a rare disease.

16/06/2022

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Justin Bieber: Is Ramsay Hunt syndrome linked to COVID vaccines?

The Canadian pop singer said this rare condition had paralysed half his face. Here’s what you need to know about it.

13/06/2022

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Euronews Debates

How can Europe advance rare diseases innovation? | Euronews Debates

IN PARTNERSHIP WITH BIOGEN

Euronews has gathered a panel of experts, industry leaders and key players in Brussels to address the issue of how rare disease provision can be advanced in the EU.

07/01/2022

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Meet the father who built a home laboratory to save his child’s life

The medicine that could help this man’s son is not available in China, while COVID prevented any possibility of travelling abroad for treatment.

25/11/2021

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Blind Japanese skateboarder going by feel

Ryusei Ouchi has all the usual trappings of a skateboarder -- the baggy T-shirt, the low-slung trousers, the flat-peak baseball hat. But he also skates with something else: a cane - because he is almost completely blind

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UK baby first to receive a game-changing gene therapy on the NHS

Zolgensma is a potentially life-saving therapy for five-month-old baby Arthur Morgan. It’s also one of the world’s most expensive drug.

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Web Summit 2019: AI and drug development mark new era for pharma

Web Summit 2019: AI and drug development mark new era for pharma

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Tourists quarantined in Mongolia after two die of bubonic plague

Tourists and residents at a city in Mongolia have been in quarantine for almost a week after two people died of the bubonic plague after eating what one tourist called a 'woolly, fat hamster,'

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British baby Charlie Gard has died

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Polio in decline in Pakistan

Polio is at last beginning to subside in Pakistan, however, with the Taliban holding a vendetta against those daring to vaccinate against the highly contagious disease, how much can one man do to cont

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Croatian charity calender launched to help Down's syndrome children

A charity calender is being produced featuring Croatian actors, sporting stars, pop singers and TV personalities.

10/10/2016

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Rare diseases a cause for concern for Europe’s health service

There are 6-8 thousand rare diseases and there is no effective cure existing against most of them according to EURORDIS, the European Organisation

28/02/2016

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Zika virus continues to spread as pregnant women are advised to avoid traveling to Latin America

El Salvador is the latest country in Latin America to be put on alert over the “mosquito-borne Zika virus”:#ZikaVirus: Women in El Salvador advised

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South Korea's President cancels planned US visit as more deaths from MERS are announced

The President of South Korea has cancelled this weekend's planned visit to the US as two more deaths from MERS are announced.

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WHO says new meningococcal vaccine "acceptable" for use by UN organisations

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