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EU Court halts Commission’s ban on drug for rare liver disease
In an unusual turn of events, the EU's top court has temporarily suspended the European Commission's decision to revoke the marketing authorisation for a drug used to treat the rare autoimmune liver disease.
Gene-editing therapy for rare blood disorder launches in England
Researchers believe the treatment could be a cure for a genetic condition that normally requires patients to get blood transfusions every three to five weeks to survive.
Commission’s hospital exemption divides health sector
The inclusion of the hospital exemption for advanced therapies in the new pharmaceutical regulation does not satisfy health organizations and industry amidst accessibility concerns.
What is the ‘hospital exemption’, and why does it matter?
A proposed overhaul of EU pharmaceutical rules would impact on the principle of hospital exemption for advance therapies and increase the requirements to ensure uniform implementation.
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Scientists in a race against time to cure rare diseases
In partnership with The European Commission
The relentless quest for answers, the spirit of collaboration, and a steadfast belief in the power of science is pushing medical technology forward to treat the world's rarest diseases.
Why is the Diagnosis of Rare Diseases So Elusive?
In partnership with The European Commission
In the heart of Romania, nestled within the scientific hub of Craiova, a state-of-the-art laboratory is aiming to unravel the mysteries of rare diseases.
Stiff person syndrome: What we know about Celine Dion's rare disorder
The singer has been diagnosed with stiff person syndrome, a rare neurological condition with debilitating symptoms.
From haemophiliacs to inner-humanity: what makes Rankin tick?
The world-famous photographer Rankin speaks to Euronews Culture about his latest project on haemophilia, shooting the Queen, and how he's come to understand human condition.
Monkeypox outbreak: Everything you should know about the virus so far
The smallpox-related virus has been mostly affecting men who have sex with men. Authorities are trying to curb its spread without perpetuating stigma.
Rare diseases in Europe: does data sharing hold the key to progress?
In partnership with The European Commission
Smart Health looks at how the EU's new European Health Data Space aims to improve care and treatment for patients suffering from rare diseases through better data and information sharing.
Rare diseases: "Recognition of a disability is still complicated"
In partnership with The European Commission
Diagnosis and treatment of rare illnesses can often be complicated due to the condition's very nature. Caroline suffers from a rare genetic disease called Stargardt Syndrome. Smart Health spoke to her about what it's like to live with a rare disease.
Justin Bieber: Is Ramsay Hunt syndrome linked to COVID vaccines?
The Canadian pop singer said this rare condition had paralysed half his face. Here’s what you need to know about it.
How can Europe advance rare diseases innovation? | Euronews Debates
In partnership with Biogen
Euronews has gathered a panel of experts, industry leaders and key players in Brussels to address the issue of how rare disease provision can be advanced in the EU.
Meet the father who built a home laboratory to save his child’s life
The medicine that could help this man’s son is not available in China, while COVID prevented any possibility of travelling abroad for treatment.
Blind Japanese skateboarder going by feel
Ryusei Ouchi has all the usual trappings of a skateboarder -- the baggy T-shirt, the low-slung trousers, the flat-peak baseball hat. But he also skates with something else: a cane - because he is almost completely blind
UK baby first to receive a game-changing gene therapy on the NHS
Zolgensma is a potentially life-saving therapy for five-month-old baby Arthur Morgan. It’s also one of the world’s most expensive drug.