Rare diseases

30 million Europeans affected by rare diseases

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Scientists in a race against time to cure rare diseases

IN PARTNERSHIP WITH THE EUROPEAN COMMISSION

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A handout from the UK Health Security Agency (UKHSA) shows a collage of monkeypox rash lesions at an undisclosed date.

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Monkeypox outbreak: Everything you should know about the virus so far

The smallpox-related virus has been mostly affecting men who have sex with men. Authorities are trying to curb its spread without perpetuating stigma.

28/06/2022

Rare diseases in Europe: does data sharing hold the key to progress?

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Rare diseases in Europe: does data sharing hold the key to progress?

IN PARTNERSHIP WITH THE EUROPEAN COMMISSION

Smart Health looks at how the EU's new European Health Data Space aims to improve care and treatment for patients suffering from rare diseases through better data and information sharing.

16/06/2022

Rare diseases: "Recognition of a disability is still complicated in Europe."

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Rare diseases: "Recognition of a disability is still complicated"

IN PARTNERSHIP WITH THE EUROPEAN COMMISSION

Diagnosis and treatment of rare illnesses can often be complicated due to the condition's very nature. Caroline suffers from a rare genetic disease called Stargardt Syndrome. Smart Health spoke to her about what it's like to live with a rare disease.

16/06/2022

Justin Bieber attends The Metropolitan Museum of Art's Costume Institute benefit gala on Sept. 13, 2021, in New York.

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Justin Bieber: Is Ramsay Hunt syndrome linked to COVID vaccines?

The Canadian pop singer said this rare condition had paralysed half his face. Here’s what you need to know about it.

13/06/2022

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Euronews Debates - Innovation in rare diseases: How can Europe be a global leader?

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Euronews Debates

How can Europe advance rare diseases innovation? | Euronews Debates

IN PARTNERSHIP WITH BIOGEN

Euronews has gathered a panel of experts, industry leaders and key players in Brussels to address the issue of how rare disease provision can be advanced in the EU.

07/01/2022

Haoyang was born in Kunming in the southwestern China two years ago with a very rare disease: Menkes Syndrome.

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Meet the father who built a home laboratory to save his child’s life

The medicine that could help this man’s son is not available in China, while COVID prevented any possibility of travelling abroad for treatment.

25/11/2021

Blind Japanese skateboarder going by feel

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Blind Japanese skateboarder going by feel

Ryusei Ouchi has all the usual trappings of a skateboarder -- the baggy T-shirt, the low-slung trousers, the flat-peak baseball hat. But he also skates with something else: a cane - because he is almost completely blind

26/07/2021

One of the most costly drugs in the world, Zolgensma

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UK baby first to receive a game-changing gene therapy on the NHS

Zolgensma is a potentially life-saving therapy for five-month-old baby Arthur Morgan. It’s also one of the world’s most expensive drug.

01/06/2021

Web Summit 2019: AI and drug development mark new era for pharma

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Web Summit 2019: AI and drug development mark new era for pharma

Web Summit 2019: AI and drug development mark new era for pharma

07/11/2019

European tourists quarantined in Mongolia after two die of bubonic plague

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Tourists quarantined in Mongolia after two die of bubonic plague

Tourists and residents at a city in Mongolia have been in quarantine for almost a week after two people died of the bubonic plague after eating what one tourist called a 'woolly, fat hamster,'

07/05/2019

British baby Charlie Gard has died

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British baby Charlie Gard has died

28/07/2017

Polio in decline in Pakistan

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Polio in decline in Pakistan

Polio is at last beginning to subside in Pakistan, however, with the Taliban holding a vendetta against those daring to vaccinate against the highly contagious disease, how much can one man do to cont

24/10/2016

Croatian charity calender launched to help Down's syndrome children

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Croatian charity calender launched to help Down's syndrome children

A charity calender is being produced featuring Croatian actors, sporting stars, pop singers and TV personalities.

10/10/2016

Rare diseases a cause for concern for Europe’s health service

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Rare diseases a cause for concern for Europe’s health service

There are 6-8 thousand rare diseases and there is no effective cure existing against most of them according to EURORDIS, the European Organisation

28/02/2016

Zika virus continues to spread as pregnant women are advised to avoid traveling to Latin America

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Zika virus continues to spread as pregnant women are advised to avoid traveling to Latin America

El Salvador is the latest country in Latin America to be put on alert over the “mosquito-borne Zika virus”:#ZikaVirus: Women in El Salvador advised

22/01/2016

South Korea's President cancels planned US visit as more deaths from MERS are announced

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South Korea's President cancels planned US visit as more deaths from MERS are announced

The President of South Korea has cancelled this weekend's planned visit to the US as two more deaths from MERS are announced.

10/06/2015

L’Institut Pasteur files case over 2,000 mising samples of SARS virus

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L’Institut Pasteur files case over 2,000 mising samples of SARS virus

15/04/2014

WHO says new meningococcal vaccine "acceptable" for use by UN organisations

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WHO says new meningococcal vaccine "acceptable" for use by UN organisations

03/09/2013