Innovation in rare disease: How can Europe be a global leader?

Tuesday, 15 February 2022
15:00 CET — Online



Euronews has gathered a panel of experts, industry leaders and key players in Brussels to address the issue of how rare disease provision can be advanced in the EU.


In the European Union, a disease is considered rare if it affects fewer than five people in 10,000.

This might sound small but in practice, six to eight per cent of the bloc’s population is affected by a distinct rare condition like this, which translates to between 27 and 36 million people.


We will hear insightful perspectives put forward by industry experts, lawmakers and policy makers: 


  • Yann Le Cam, CEO, EURORDIS,
  • David Nestor, Head of Neuromuscular Disease, Europe, Canada and Partner Markets, Biogen,
  • Alessandra Moretti, Member of the European Parliament, 
  • Philippe Berta Member of the National Assembly of France & President of the study group on rare diseases,


Ask your questions, join the debate, and let us know what you think. Our guests are ready to answer!


Sign-up here to get your

Our latest events

Our specialists build solutions that will exceed your expectations.